No great break-throughs or great changes to report. We just wanted to keep you posted on what is happening with my sweetheart..
Suzi's
major frustration is with her low energy and endurance. She doesn't
like the change from go-go-girl to no-go-girl. Actually, she is
fighting that no-go-girl status somewhat. She still tries to take her
daily walks. They are just shorter and slower which; which means she
doesn't enjoy them as much. She has gotten a little more used to the
fact that she needs to take a nap every day whether she really wants to
or not.
Medically, it is a little bit of a follow the bouncing ball act. Her last blood test results showed a slight improvement
in her anemia. We hope that trend continues. Unfortunately, her last
blood test also showed an increase in the Free Light Chain count to
about double what the last result was, but still half of where she
started out. The doctor is taking a wait and see attitude at this point
to see if it is a trend which may mean a change in her medication or
whether it was a one time thing resulting from the timing of the blood
test.
I
guess one reason that I want to keep these status reports going is to
make sure that as many people as possible are still actively involved in
praying for her and that you don't think that all is well and forget to
include her in your prayers. We are so grateful for your prayers and
thoughts and kind expressions of kindness and support. She is still
trying to figure out what she has done to merit such an outpouring of
love but appreciates it so much. She also knows that prayers are
effective as they have been so often in her life.
She continues to receive cards and flowers and phone calls and appreciates them so much.
This
last month, a Jewelry Party was held by Sarah (Kevin's wife) and,
without Suzi being aware, all of the proceeds went toward a Suzi's
medical expenses. Suzi was flabbergasted to tears when she was told
about it. Many of you who did not even buy jewelry donated to the event
and some very generously. Thank you so much. It is such a
demonstration of the kind of love that is going out to her and
supporting her emotionally and spiritually...along with the financial
benefit. Thank you all again. And, a special thanks to Sarah and her
sponsor for their planning and generosity in putting it together.
One of the side
benefits of Suzi's illness is the reopening of lines of communication
with friends that she has not heard from for a long time. That has
helped her somewhat realized the long-term impact that she has had one
some people's lives.
Thank you again
for all of your prayers, thoughts, phone call, flowers, fresh
vegetables, donations, etc....the list goes on and on. We hope you have
some idea of how much it is appreciated.
Please keep your
prayers coming. We are specifically asking for a blessing in the areas
of the Free Light Chains and the anemia, since we understand that the
Lord expects us to be specific in our requests and not so general.
Our love to all of you,
Suzi and Vaughn
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